 Parent/Professional Collaboration
Additional Resources
Web
Sites
Beach Center on Disability: Family
The Family page on the Beach Center on Disability Web site is especially for families who have children or adults with disabilities or special needs. The Beach Center is a research and training center at the University of Kansas that has been federally funded since 1988 to conduct research, offer training and technical assistance, and disseminate information on family issues when there is a child with a disability in the family.
http://www.beachcenter.org/families/default.aspx
Center on School, Family, and Community Partnerships
The mission for the Center on School, Family, and Community Partnerships includes conducting and disseminating research as well as policy analysis that results in new and useful knowled and practices. The goal is to help families, educators, and community emmbers work together to improve schools, strengthen family ties and enhance student learning and development. This Web site includes a wealth of information on National Partnership Schools as well as publications.
http://www.csos.jhu.edu/p2000/center.htm
Family Village: A Global Community of Disability-Related Resources
This site integrates information, resources, and communication opportunities on the Internet for persons with mental retardation and other disabilities, for their families, and for those who provide them with services and support. This site includes information on specific diagnosis, communication connections, adaptive products and technology, recreational activities, education, worship, health issues, media and literature, and more.
http://www.familyvillage.wisc.edu/
Family Voices
Family Voices focuses on fundamental inadequacies in health care and works with families to ensure that their voices are heard. A basic set of principles in all health care reform proposals is the basis for their work. The site includes projects, resources, publications, links, and more.
http://www.familyvoices.org/
Parent Advocacy Coalition for Educational Rights (PACER)
PACER Center is the Parent Training and Information Center (PTI) providing technical assistance to all other PTIs throughout the country. PACER is an advocacy and resource center for promoting parent involvement in all systems related to having a child with a disability. This is an excellent site that includes legislative information, publications, workshop information, project overviews, and specific information on juvenile justice, behavioral disorders, and more.
http://www.pacer.org/
Parents Helping Parents
Parents Helping Parents is a parent-directed family resource center serving children with special needs, their families, and the professionals who serve them. This Web site contains education, health, community, and technical resources as well as program highlights and more. A great site for parents as well as teachers and other professionals.
http://www.php.com/
Partnership for Family Involvement in Education (PFIE)
The U. S. Department of Education’s role in the partnership is to provide a network of support for the companies and organizations around the country working to make education a community affair. This site introduces the concept of four Partnership sectors: Family-School, Community Organizations, Religious Groups, and Employers for Learning.
http://www.ed.gov/pubs/whoweare/index.html
Web Products
Family Involvement in the Educational Development of Youth with Disabilities: A Special Topic Report of Findings from the National Longitudinal Transition Study-2 (NLTS2) (2005)
The National Longitudinal Transition Study-2 (NLTS2) provides the first national picture of the involvement of families in the educational development of their secondary-school-age children with disabilities. NLTS2 is one component of a portfolio of longitudinal studies that span the age range of children and youth with disabilities. These students are sponsored by the Office of Special Education Programs (OSEP) of the U.S. Department of Education in response to requirements of IDEA '97. NLTS2 is a rich source of information on the characteristics, experiences, and achievements of youth with disabilities who were ages 13 through 16 and receiving special education services in grade 7 or above when they were sampled in 2000.
http://www.nlts2.org/reports/familyinvolve_report.html
Technical Assistance on Transition and the Rehabilitation Act: A Survey of Parent Centers  (April 2001)
A report that provides information on the transition needs and issues of parent centers across the U.S. Available in PDF (66 pages).
http://www.pacer.org/tatra/resources/survey.pdf
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